Anthony Gallonio has spent most of his career working in higher education admissions and financial aid, watching young people select, apply to and enroll in colleges. But when his daughter Grace received a cancer diagnosis 14 years ago, when she was a year old, he realized there was an underserved group of teens who needed support in college exploration: cancer patients.

“I remember looking at these kids coming in [to the hospital] thinking, ‘How are they doing it?’” Gallonio said. “Their lives are still going on, high school is taking place, college is still in the future. We know one missed application or one missed form or one missed deadline could mean the difference between getting into a school or not or getting tens of thousands of dollars in scholarships or not.”

In 2011, Gallonio established the National GRACE Foundation, a nonprofit that offers free information and advice on higher education for families of young people who survived childhood cancer. The group is supported by volunteers across the country who work in higher ed, illuminating the hidden curriculum to encourage student success.

The background: GRACE, named after Gallonio’s daughter and short for Growing, Recovering and Achieving a College Education, is designed to break down barriers to enrollment for childhood cancer survivors and support parents and caregivers navigating college applications and beyond.

“The whole goal has been to take the stress out of the college admissions and financial aid process for families who have a lot of stress going on and try to help them avoid the mistakes that I have seen over the years,” Gallonio said.

A 2019 study of 16,700 childhood cancer survivors found that about half graduated from college; those reporting chronic conditions were even less likely to complete a degree by age 25.

Many pediatric cancer survivors Gallonio works with aspire to careers in helping roles, including in health care, social services or research, he said. Getting into and through college is just the first step in that journey.

How it works: GRACE provides a range of services, including offering advice on financial aid, tracking upcoming deadlines, explaining confusing terminology or jargon, and highlighting various colleges and programs that might be a good fit for the student. A majority of the students and parents come from low- or middle-income families, and they often find the foundation through word of mouth or through partnerships with hospitals.

“I think about our services in the way that a family might hire college consultants, but we do it all for free,” Gallonio said. “That’s the group that we’re seeing—those folks who need help but also don’t have necessarily the resources to pay for [a consultant].”

GRACE volunteers also provide in-person and webinar events for parents and caregivers on topics like college costs and scholarships.

Once students are enrolled, GRACE supports their persistence by working as a liaison between institutions and families. They might appeal for more financial aid, for instance, or advocate for student supports through disability services offices. “We know what [families] are going through, we know what these school are going through, we kind of speak their language,” Gallonio said.

The organization has up to 30 volunteers at any point in the academic year, but “we are always looking for volunteers in the higher ed landscape—anywhere in the country, at any type of institution,” to provide counseling to pediatric cancer survivors, Gallonio said.

Building better: Since launching in 2011, GRACE has assisted over 300 young people in their pursuit of a college degree, and Grace, the foundation’s namesake, is “a happy and healthy 15-year-old,” Gallonio said. Families have also secured over $3 million in scholarships through the foundation’s advocacy work.

Anthony Gallonio/National GRACE Foundation

Over the years, GRACE has expanded services beyond the Northeastern U.S., where Gallonio is located, to support prospective students from coast to coast. As the foundation’s reach has grown, so has its perspective on postsecondary education.

Initially, the focus was to help cancer patients have a good shot at a competitive institution. It has since expanded to highlight the value of higher education in any capacity and offer vocational or alternative pathway support as well.

“A lot of it has to do with breaking down that [college] can be done, that it can be affordable,” Gallonio said. “The stories that we hear about debt, about the $90,000 colleges—that’s not every college, and there are colleges in every state that a family can afford to go to.”

Gallonio is considering changing GRACE’s acronym to “Growing, Recovering and Continuing Education,” to reflect the wider range of pathways available to young people.

This fall, GRACE will launch a mobile application and webpage so prospective students and parents can explore colleges and universities’ disability services, careers and trades, financial aid information, and selectivity rates. The app also includes a personalized scholarship search service, allowing individuals to put in their information and receive tailored suggestions for scholarships to apply for.

“We try to make it a one stop,” Gallonio said. “We’re not charging them for usage or anything like that. Hopefully it saves our volunteers and us time.”

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